365 Days of Life

Sunset.  Foto Credit: Dave
Sunset.
Photo Credit: Dave

Today is a special and emotional day.  A year ago, on September 16 of 2014, I was in the hospital with Dave and my parents patiently waiting for the harvested bone marrow cells my brave sister Caro donated on a pure act of unconditional and endless love to save my life.  I am forever grateful to Caro, Dave, my parents, sister Cris, my in-laws, Marsha, brother-in-law Rafa, my friends, colleagues, and extended family for their prayers and support.

The fact that today I was able to run more than three miles at my fastest pace on record is a result of a joint effort and countless hours of care from my family and the talented team at Johns Hopkins.

Thank you to the love of my life, Dave, for serving as the Caregiver-in-Chief who made sure I had everything I needed to get back on my feet.  You are my inspiration, my everything.  I love you!

Thank you so much Marsha for sharing your expertise as a nurse to take care of me during the tough first period of post-transplant.  I am incredibly thankful to my mother-in-law, Kathy, who dedicated over two months to take care of me and helped us with multiple chores at home, you have served to remind me that love and family matter the most.  Thank you to my father-in-law, Terry, for his support, patience, and humor during extremely challenging times.  Thank you to Dr. Kanakry, Laura, Dr. Bolanos-Meade, Viki, Laura, and Lynne.

Thank you to all my friends and colleagues who shared their love and encouragement in multiple creative and thoughtful ways.

Although this year hasn’t been easy, I am thankful for the gift of life and the opportunity of having a future free of disease. I am certain God has a plan and a mission for me (God, this is just a reminder that I am here, I am listening, I am ready, show me the way….)

Today I celebrate life!

Thank you for reading

Day 32 Post Transplant

I didn't lose my eyebrows. LOL!
I didn’t lose my eyebrows. LOL!

Today is day 32 post transplant!!! I am tired but feeling better. This is the first time I have a day off and I don’t have to go to the hospital!!!

After the transplant I was feeling well, just tired. However, days later I started struggling with constant nausea and headaches that I have never experienced before; it was rough. Also I lost my hair on day 13.

During this 30 + days I go to the hospital 7 days a week to check my levels and to make sure that I am doing ok. I have to wear a mask most of the time to avoid bacteria and infection. So far I have received a round of platelets and two blood transfusions.

Two days ago I was allowed to go to a public space and we went to the groceries (wearing my mask), It was interesting to see the reaction of other shoppers when they saw me. 🙂

The Mask
This the mask I have to wear.

I want to take the opportunity to thank my husband Dave, my in-laws and Marsha who have served as caregivers and have been patient with me particularly when I don’t feel great. Thank you to my parents, sisters, family, friends, and colleagues that are praying and always ready to help.

Thank you very much for the lovely cards, flowers, gifts, and thoughtful posts on my blog and Facebook which always make me smile. I am grateful for the encouragement and love.

Regarding Music:  Many of you know that my talented sister Cris is on the show “La Voz” (The Voice) in Mexico. She passed the blind auditions, became a member of #TeamYuri and will be in the battles this Sunday. For my friends in Mexico tune in this Sunday at 8:00 pm. Thank you for supporting my sister.

Con todo Cris!!!
Con todo Cris!

Love, – B