Day 32 Post Transplant

I didn't lose my eyebrows. LOL!
I didn’t lose my eyebrows. LOL!

Today is day 32 post transplant!!! I am tired but feeling better. This is the first time I have a day off and I don’t have to go to the hospital!!!

After the transplant I was feeling well, just tired. However, days later I started struggling with constant nausea and headaches that I have never experienced before; it was rough. Also I lost my hair on day 13.

During this 30 + days I go to the hospital 7 days a week to check my levels and to make sure that I am doing ok. I have to wear a mask most of the time to avoid bacteria and infection. So far I have received a round of platelets and two blood transfusions.

Two days ago I was allowed to go to a public space and we went to the groceries (wearing my mask), It was interesting to see the reaction of other shoppers when they saw me. 🙂

The Mask
This the mask I have to wear.

I want to take the opportunity to thank my husband Dave, my in-laws and Marsha who have served as caregivers and have been patient with me particularly when I don’t feel great. Thank you to my parents, sisters, family, friends, and colleagues that are praying and always ready to help.

Thank you very much for the lovely cards, flowers, gifts, and thoughtful posts on my blog and Facebook which always make me smile. I am grateful for the encouragement and love.

Regarding Music:  Many of you know that my talented sister Cris is on the show “La Voz” (The Voice) in Mexico. She passed the blind auditions, became a member of #TeamYuri and will be in the battles this Sunday. For my friends in Mexico tune in this Sunday at 8:00 pm. Thank you for supporting my sister.

Con todo Cris!!!
Con todo Cris!

Love, – B

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September 16 – My Second Birthday

September 16, 2014 is my second birthday thanks to my brave sister Caro who donated bone marrow to save my life. Caro is now in the list of real heroes. Thank you sis, I love you. 🙂

Today I am feeling well, just tired and have been experiencing nausea.

Dave’s aunt Marsha, and my parents have been helping us out and taking care of me and my sister while we recover.

I want to thank all our dear friends and family that have been praying, helping, and thinking about us during this time.

A special thanks to my husband Dave, he is my everything. I couldn’t do this without his love, support, and humor.

Thank you for reading and I will keep you posted on my road back to full health.

Love,
Bea

Towards a Bone Marrow Transplant

I need a new immune system since mine no longer recognizes and attacks cancer cells; that is why on September 16, 2014 I am going to have a bone marrow transplant at Johns Hopkins. My amazing sister Caro is my donor!!!

A bone marrow transplant looks like a regular blood transfusion. The difference is that this procedure provides a cure for many types of blood cancers and saves lives. The transplant entails taking healthy cells from a compatible donor and infuse those into the bloodstream of the patient. In order to prepare the patient for the transplant high dose chemo and radiation are required.to replace the old and defective cells.  After the transplant the patient has a high risk of infection and needs to be isolated, wear a mask, and be extremely careful with potential sources of external infections.

The type of transplant I will have is called a haplo, half, or mini. This is an option for patients like me that don’t have a donor who is 100% match but have relatives that are 25% or above compatible. Before my transplant on Tuesday I have to do 5 days of chemo and 1 day of full body radiation. Today is my day No.2 of chemo and I am feeling well, just a bit tired.

These days I have a lot of mixed feelings, sometimes I am positive and hopeful and others I am just plain scared about everything. I am living one day at a time and thinking about what I want to do once I am healthy again and free to live my life free of this disease.

I am reading the book “Raw Faith” from cancer survivor Kasey Van Norman a great resource that is helping me to strengthen my faith; something I need so much right now.

Thank you for reading, thank you for the prayers, the positive energy, and encouragement.

I will keep you posted!

Love, Bea

PD. Before the chemo gets all my hair. I cut it short.

Short Hair Again